Don't Worry About Me

I am finding as I post in this blog more people are becoming concerned about me.   I am doing alright.   I have one foot moving in front of the other.   Tonight on top of it all I had problems with work posts to social media.   That is my tipping point.    I can’t handle that with everything.  

I don’t post or blog for you to feel sorry for me or worry about me.  I blog to try to connect to others in the same place as me as a way to connect.   I blog to share my story with the beast.   I blog to share my family.  

Years ago Kate was diagnosed with Colonic Neuropathy and Viseral Hypergesia.   Yup there you go.   Two very well known and common diagnosis.   Two diagnosis that took us ten years to accurately be able to identify.   At the time I really, honestly wished she had something that came with a support group.   Well crap, that didn’t mean I wanted someone I loved to be diagnosed with something that came automatically equipped with support groups.  

My time in support groups with Alzheimer’s has been sporadic.   With Jackie and Mena at work I feel we have formed our own type of support group.   And at times in meetings I found I wasn’t prepared for what was coming at me but only where I was.  

Please don’t see these posts as I am losing it (it’s already lost), or to feel sorry for me/us.   I want to share my story, my journey.   At times it is hard, at times it sucks.  At times I find moments of just pure happiness or reflection.   This is me sharing my journey with early onset Alzheimer’s.   This is my family’s journey with the beast.