How do I do this?

How do I do this?

How am I supposed to keep this all going? What is coming at me and how fast is it coming?

I went to Joe's first care meeting yesterday. It is so hard to walk into the Day program building. I know he is being well cared for but they are so old and impaired. How did we get here? I also left confused. On Joe's first Montreal cognitive test he scored a 22 or mild cognitive dysfunction. A year plus later he scored a 16. We were told his disease is aggressive. Yesterday in the care meeting they said they used the BRCS testing and his score was a 3.8 which they said was mild cognitive dysfunction.

As a pharmacist I like numbers. When my kids were sick if they had a fever it pointed me in a direction. If I have a patient with blood values, I have an idea of where they are. I watched Joe go through the Montreal testing. I saw the decline from one year to the other. This disease doesn't give me much to work with. I have a list of what could be coming at us with an unpredictable timeline.

Eric leaves for school two weeks from today. Joe goes to adult day health three days a week. I work six days a week. At least two nights a week I work late. Those two days I work 12-14 hour days. Joe doesn't even want to hear about increasing his days at the program. I have talked to people and gotten some ideas about turning off the circuit breaker to the stove and unplugging the garbage disposal. I have installed cameras to watch him in the living room and kitchen. Yet with all of this I cannot keep a constant eye on him. He may be fine today and tomorrow but what about the day after that and so on. How do I keep him safe, work two jobs, keep up communication with my kids and not loss my mind?

I can never be a telemarketer

I can never be a telemarketer

Thank God for unanswered prayers

Thank God for unanswered prayers